About Our Charity

On September 12, 2007 we welcomed into the world our son, Dexter William Robinson. The day after he was born, we received the devastating news that Dexter had a very rare genetic disorder called Zellweger Syndrome. We were told that he would not survive past 6 months old.

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On October 15, 2007, we held him in our arms as he took his last breath. We were very fortunate to have been introduced to Derian House Children’s Hospice. We were at Derian House when he died.

Dexter’s short but love-filled life has taught us so many things, and one of those things is that if it weren’t for incredible places like Derian House, families like us would have to face the death of their child alone. Throughout the most terrible time, they remind you that you are still a family, and still part of the human race.

Startlingly, Derian House receives only £40,000 per year from the government. It relies almost entirely on donations and volunteers. To run the hospice costs almost £2 million pounds a year.

We feel that in Dexter’s memory, it is our duty to assist places like Derian House, to exist and thrive in these difficult economic times.Each year on or around Dexter’s birthday we work towards raising money for this incredible charity.

However, we also felt that Dexter would want us to help some children individually as well. As such, the object of our charity, Dexter’s Wish, is:

“To support organisations that offer help and support to families of children with Life Limiting Conditions, along with individual support for special children and their families”

The main organisations we aim to support are Derian House Children’s Hospice in Chorley and St. Mary’s Hospital Special Care Baby Unit in Manchester.  As well as that we will support very special families who meet the criteria that we have set out for our charity.